Takes place Saturday, September 24th at Ochsner Medical Center
New Orleans, Louisiana (July 19, 2022) – The Louisiana Affiliate of the Huntington’s Disease Society of America (HDSA) will host the Nola Team Hope Walk & Education Day on Saturday, September 24th at 8:30 AM at Ochsner Medical Center. The event will kick off with breakfast, and education day, and then end with a Team Hope Walk!! All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“Ochsner Main Campus of New Orleans is thrilled to host HDSA's Team Hope Walk, bringing the HD community of Southeast Louisiana and beyond together, in person, once again,” said Anne Marie Savoy, LMSW, Clinical Coordinator at the HDSA Center of Excellence at Ochsner Health. “After so much time apart, this year's Team Hope Walk will provide a chance for the HD community to come together for inspiration, support, and hope for the future. I am so excited to gather our HD family in person and walk together for HDSA this year.
Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in over 100 cities across the U.S. and has raised more than $20 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors, and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families.
For more information about the event, please contact Anne Marie Savoy (annemarie.savoy@ochsner.org, 504-842-8771). Online registration and donation can be found at hdsa.org/thwnola
HDSA's Team Hope Walk Program is nationally sponsored by Genentech and Teva Pharmaceuticals.
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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
Matthew Santamaria
Communications Manager
(212) 242-1968 ext. 204
msantamaria@hdsa.org