MAY IS HD AWARENESS MONTH | #LETSTALKABOUTHD

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families.

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NOMINATIONS ARE NOW OPEN!

Nominate the extraordinary individuals, families and organizations in your community and the HDSA Chapter or Affiliate that has accomplished great things during 2024.

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MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

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Watch the HDSA EL-PFDD Meeting!

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2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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Registration is now OPEN!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

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THE MARKER: 2023 HDSA RESEARCH REPORT

In 2023, HDSA supported fantastic Huntington’s disease science, shared research news with the community, and amplified family voices in drug development. The latest issue of The Marker is now available!

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#LetsTalkAboutHD with Joe Parks

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#LetsTalkAboutHD with Ginger Hermes

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FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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Research Trial Now Recruiting

The Roche/Genentech GENERATION HD2 Trial is testing a drug called tominersen for its safety and ability to lower harmful huntingtin protein. This study is recruiting at the HDSA Center of Excellence at Vanderbilt University in Nashville and at the HDSA Center of Excellence at the University of Alabama. You can also view this trial on HD Trialfinder for more information. Create an HD Trialfinder profile or re-match today to find more opportunities to participate near you.

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Join HDSA on Rare Disease Day – February 28th!

On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!

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