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  • HDSA Giving Tuesday

    Join us on Giving Tuesday — your gift helps unlock a $75,000 match and powers care, support, and research for HD families.

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  • 2025 Amaryllis

    The amaryllis is a symbol of strength and determination for the HD community. Place your orders TODAY!!

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  • Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

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  • 📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

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  • HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

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  • #LetsTalkAboutHD with Joe Parks

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  • #LetsTalkAboutHD with Ginger Hermes

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  • FIND HDSA RESOURCES NEAR YOU

    HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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  • HDSA SOCIAL WORKERS

    HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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  • HDSA SUPPORT GROUPS

    HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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  • Research Trial Now Recruiting

    The Roche/Genentech GENERATION HD2 Trial is testing a drug called tominersen for its safety and ability to lower harmful huntingtin protein. This study is recruiting at the HDSA Center of Excellence at Vanderbilt University in Nashville and at the HDSA Center of Excellence at the University of Alabama. You can also view this trial on HD Trialfinder for more information. Create an HD Trialfinder profile or re-match today to find more opportunities to participate near you.

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  • Join HDSA on Rare Disease Day – February 28th!

    On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!

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